Invisible and unseen disabilities, the fifth series of videos Égalité
New GMOs, no to open field experimentation. Civil society in Italy is activated
18 March 2023
The Parco della Gioia in Rome. A historic, green and inclusive oasis
April 7, 2023
The fifth series of Égalité videos – created by the volunteer Mina Stevens (Philadelphia, USA), thanks to the collaboration with ImpacTrip – is dedicated to invisible and unseen disabilities. Or rather not known, or not understood enough to think about what is necessary to promote inclusion in any social context.
Understanding 'invisible' disabilities, the fifth series of Égalité videos
The five protagonists of the fifth series of Égalité videos, in alphabetical order below.
Fabiano Lioi (on the cover, next to Mina) shares the experience of a life lived 100% – traveling around the world in a wheelchair – between cinema, art, music and writing. (1) The approximately 450 fractures due to 'crystal bones' (osteogenesis imperfecta) prompted the writing of his unmissable book 'OI Art in a fracture' (2,3).
Antonio Menconi. Enthusiast and scholar of the art of bread-making, the extra virgin olive oil supply chains, cheeses and the many other delicacies that characterize the culture and traditions of the Italian territories, Antonio shares the experience of a gastric tumor and daily life with a ostomy. One of the many 'invisible disabilities' that deserve attention from everyone. (4)
Blindness and low vision
Blindness and low vision they remain at the top of the list of disabilities ignored by the society that surrounds us, with the paradoxes – also widespread in Rome, among the streets and stations of the ATAC SpA underground network – of interrupted tactile paths and non-functioning acoustic signals.
Antonio Organtini illustrates the concrete commitment of the blind and visually impaired community in the S. Alessio – Margherita di Savoia service company for the visually impaired, in Rome, where he works as general manager.
Alessandro Napoli and Sonia Gioia, husband and wife, in turn work in the Communication and external relations area of the Sant'Alessio Institute. As well as offering voices, music and content to our Partner 'Radio 32 – the radio that listens'.
thank you again to our friends Fabiano, Antonio (Menconi and Organtini), Alessandro and Sonia. And to all of you, good vision, #égalité! (5)
Dario Dongo
Note
(1) Pino Ciocioli. The character. Face like cinema, the story of Fabiano Lioi and his rare disease. occur. 8.2.23 https://www.avvenire.it/attualita/pagine/faccia-da-cinema
(2) “Art in a fracture”: Fabiano Lioi's crystal bones. Inter res https://www.interris.it/copertina/arte-frattura-fabiano-lioi/amp/
(3) Osteogenesis imperfecta. Bambino Gesù Children's Hospital https://www.ospedalebambinogesu.it/osteogenesi-imperfetta-80268/
(4) Sabrina Bergamini. Invisible diseases, patients are alone and ask Dr. Google. Égalité. 24.2.23
(5) Previous Égalité video series:
- Architectural barriers in Rome, the first videos of Égalité
- Life in Rome and Milan with a motor disability, the new videos by Égalité
- Third series of videos on Égalité, disability and inclusion
- Experiencing disability in Rome and Paris, the fourth series of videos from Égalité.
