Disability
Disability
July 27 2019
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August 10 20191 in 6 individuals today he suffers from disabilities in OECD countries, and the figure is destined to grow in countries such as Italy which stands out both for its longevity and for its above-average population decline.
From the stroller to the walker (in 2050 the over-65 will be 28% of citizens in the EU, 34,3% in Italy). In addition to the cases of diseases of the most varied, accidents and their after-effects.
'Almost everyone will be temporarily or permanently impaired at some point in life, and those who survive to old age will experience increasing difficulties in functioning. Most extended families have a disabled member, and many non-disabled people take responsibility for supporting and caring for their relatives and friends with disabilities. Every era has faced the moral and political issue of how best to include. ' (1)
Disability, 1 in 6
Disability affects every family and it must involve all the political parties, in the government as well as in the opposition, in the democratic alternation. To fulfill the commitments undertaken in the UN Convention on the Rights of Persons with Disabilities, which Italy has also implemented for a dozen years. (2)
From words to deeds, Italian society is still light years away from the objectives, as far as the rights of inclusion of people with any type of disability are concerned. Rights to study and work, to health, to mobility and independent life, to the recognition of their condition.
'Many people with disabilities do not have equal access to health care, education, and employment opportunities, do not receive the disability-related services that they require, and experience exclusion from everyday life activities. Following the entry into force of the United Nations Convention on the Rights of Persons with Disabilities (CRPD), disability is increasingly understood as a human rights issue. ' (3)
A question of civilization, but also economics and development. 'Disability is also an important development issue with an increasing body of evidence showing that persons with disabilities experience worse socioeconomic outcomes and poverty than persons without disabilities. ' (4)
Pride and Prejudice, Disability Pride
The causes and conditions of disadvantage linked to disability are many, and there are just as many discriminations and prejudices that still dominate the social context. In Italy as in many other countries that claim to be 'civil'.
To overcome prejudice is with pride that the associations belonging to the Disability Pride they address their requests to the political parties, putting at their disposal the experiences gained to face the emergency.
Cultural barriers they are the real obstacle, which derives from the poor understanding of reality and manifests itself in every context. Without any control by the central, regional and local authorities who must instead guarantee compliance with the rules governing inclusion.
There is no shortage they are innumerable, although they escape those who do not suffer the aforementioned discrimination every day. The writer, in turn, can only express a limited point of view. To be integrated, indispensably, with the experiences of the various categories of disabled people. However, a brief review follows:
- city planning. High sidewalks, without ramps and sensory stimuli, prevent movement everywhere, in almost all Italian municipalities,
- public transport. Bus urban often inaccessible, extra-urban buses almost always inaccessible. subways often without lifts (therefore precluded to electric wheelchairs, as well as discriminatory for the generality of individuals with reduced mobility, forced to wait for the intervention of employees). trains so taller than the sidewalks that it almost always requires the use of forklifts, with services to be booked at least 12 hours in advance, without the possibility of purchasing online tickets. Trains often inaccessible, in any case (so for example 2 trains out of 3, on the Rome-Civitavecchia route). Stations still not prepared (from Rome Trastevere to Varese, passing through Senigallia and hundreds of others),
- public facilities. Schools sometimes inaccessible, starting from primary education. University almost always inaccessible, with rare exceptions. Hospitals in many cases inaccessible, as well as the ASL,
- private facilities intended for the public. Medical Studies basic, not required to ensure accessibility. Post offices, shops and public businesses almost all equipped with steps but without ramps, as well as accessible bathrooms. Sports centers and swimming pools, too often 'closed'. Hotels, campsites, bed & breakfast they are in turn inaccessible in most cases, despite often fraudulent promises that local administrations fail to check. Entrances with stairlifts that cannot be used for electric wheelchairs, lifts and narrow doors, bathrooms without the essential requirements to guarantee the personal hygiene of those with mobility difficulties,
- beaches. The state-owned concessions to date do not provide for any obligation to guarantee access to those with locomotion difficulties. Thus, for example, in Lazio, on 350 km of coastline, there are 5 beaches that are only theoretically accessible and in any case not reachable by public transport. Their realization is also the merit of voluntary associations, without any contribution from public administrations.
Pride serves to affirm dignity. Uniform rules are needed to guarantee equal rights in every Region, Province and Municipality of Italy. As in any other country. The census of barriers, architectural and not only, is the premise for defining programs for solving problems, in defined times to be subjected to checks, responsibilities and sanctions. And every project must be shared, down to the smallest detail, with patient associations.
Goodism and solidarity are not enough, as infrastructure deficits force the disabled into humiliation and unacceptable dangers. In addition to discouraging autonomy, only utopian in such scenarios. And the costs of all this, of course, fall on the disabled and their families.
Un-Super-able Rights
Un-Super-able it is the name that best suits the disabled who resist this environment unable to welcome them and are super-skilled in resilience, patience, perseverance.
The bureaucracy and the timing of the management of the practices for the recognition of disability, the granting of assistance, the authorization of aids exceed the imagination of Kafka's novels.
Availability of treatments, drugs and services varies enormously from region to region. According to the respective health and welfare policies, as well as the budget allocations.
The in-Super-able in the Lazio region, to cite just one example, they must go to treatment centers at their own expense and expense, unless they have to give it up due to inability to organize their own transport (and / or incompetence). Thus finding themselves deprived, after months or years on the waiting list, of those treatments that the public health service is often not able to cover, even through private centers with agreements, if not a small part of the needs.
The families they are still the only real salvation, to make up for the lack of public assistance. But family members or close friends who are forced to give up work to provide essential assistance to their loved ones do not receive any form of recognition. Neither salary, nor social security.
In the Middle Ages of Rights, the un-super-able is only the number of a practice that is managed according to pre-established protocols, if and when it is possible. The prescriptions - for example, of disposable devices - are rigid, regardless of the concrete needs of the individual patient. And so the drugs passed from the mutual, whose selection is often inspired by criteria of economy rather than efficacy and tolerability of the active ingredients.
As that wasn't enough, in Italy the right to choose the healthcare system to refer to for the supply of aids will also disappear. You will have to address the winner of the contract, as if it were the construction of a motorway. Since these are prostheses and orthopedic materials of daily use, prams and anti-decubitus pillows to be chosen, calibrated and adapted with extreme care and professionalism, in the context of relationships based on trust with professionals that the unskilled sometimes meet more often doctors.
The pride of the Disability Pride it therefore serves to obtain the affirmation of the un-super-able rights. Without waiting any longer, without compromise, in compliance with the law that has been ignored so far.
(Dario Dongo)
Footnotes
1. See World Report on Disabilities, WHO (2011), Chapter 1 - Understanding Disabilities, its http://www.who.int/disabilities/world_report/2011/report.pdf
2. See law 67/06, 'Measures for the judicial protection of persons with disabilities who are victims of discrimination', up http://www.parlamento.it/parlam/leggi/06067l.htm
3. See note 1, Introduction
4. The schooling of the disabled is severely limited due to various barriers. This is revealed by a study, published by Unicef in March 2018, which was conducted in 49 countries but not also in Italy (nor in other EU countries), due to unavailability of data. See http://uis.unesco.org/en/news/education-and-disability-analysis-data-49-countries
Dario Dongo, lawyer and journalist, PhD in international food law, founder of WIISE (FARE - GIFT - Food Times) and Égalité.
Dario Dongo
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Environment
July 27 2019Disability
August 1 2019Disability affects 1 in 6 individuals in OECD countries. The figure is destined to grow in countries such as Italy, which stands out both for its longevity and for its above-average population decline.
From the stroller to the walker (in 2050 the over-65 will be 28% of citizens in the EU, 34,3% in Italy). In addition to the cases of diseases of the most varied, accidents and their after-effects.
'Almost everyone will be temporarily or permanently impaired at some point in life, and those who survive to old age will experience increasing difficulties in functioning. Most extended families have a disabled member, and many non-disabled people take responsibility for supporting and caring for their relatives and friends with disabilities. Every era has faced the moral and political issue of how best to include. ' (1)
Disability, 1 in 6
Disability affects every family and it must involve all the political parties, in the government as well as in the opposition, in the democratic alternation. To fulfill the commitments undertaken in the UN Convention on the Rights of Persons with Disabilities, which Italy has also implemented for a dozen years. (2)
From words to deeds, Italian society is still light years away from the objectives, as far as the rights of inclusion of people with any type of disability are concerned. Rights to study and work, to health, to mobility and independent life, to the recognition of their condition.
'Many people with disabilities do not have equal access to health care, education, and employment opportunities, do not receive the disability-related services that they require, and experience exclusion from everyday life activities. Following the entry into force of the United Nations Convention on the Rights of Persons with Disabilities (CRPD), disability is increasingly understood as a human rights issue. ' (3)
A question of civilization, but also economics and development. 'Disability is also an important development issue with an increasing body of evidence showing that persons with disabilities experience worse socioeconomic outcomes and poverty than persons without disabilities. ' (4)
Pride and Prejudice, Disability Pride
The causes and conditions of disadvantage linked to disability are many, and there are just as many discriminations and prejudices that still dominate the social context. In Italy as in many other countries that claim to be 'civil'.
To overcome prejudice is with pride that the associations belonging to the Disability Pride they address their requests to the political parties, putting at their disposal the experiences gained to face the emergency.
Cultural barriers they are the real obstacle, which derives from the poor understanding of reality and manifests itself in every context. Without any control by the central, regional and local authorities who must instead guarantee compliance with the rules governing inclusion.
Disability, cultural barriers
There is no shortage they are innumerable, although they escape those who do not suffer the aforementioned discrimination every day. The writer, in turn, can only express a limited point of view. To be integrated, indispensably, with the experiences of the various categories of disabled people. However, a brief review follows:
- city planning. High sidewalks, without ramps and sensory stimuli, prevent movement everywhere, in almost all Italian municipalities,
- public transport. Bus urban often inaccessible, extra-urban buses almost always inaccessible. subways often without elevators (therefore precluded to electric wheelchairs, as well as discriminatory for the generality of individuals with reduced mobility, forced to wait for the intervention of the employees). trains so taller than the sidewalks that it almost always requires the use of forklifts, with services to be booked at least 12 hours in advance, without the possibility of purchasing online tickets. Trains often inaccessible, in any case (so for example 2 trains out of 3, on the Rome-Civitavecchia route). Stations still not prepared (from Rome Trastevere to Varese, passing through Senigallia and hundreds of others),
- public facilities. Schools sometimes inaccessible, starting from primary education. University almost always inaccessible, with rare exceptions. Hospitals in many cases inaccessible, as well as the ASL,
- private facilities intended for the public. Medical Studies basic, not required to ensure accessibility. Post offices, shops and public businesses almost all equipped with steps but without ramps, as well as accessible bathrooms. Sports centers and swimming pools, too often 'closed'. Hotels, campsites, bed & breakfast they are in turn inaccessible in most cases, despite often fraudulent promises that local administrations fail to check. Entrances with stairlifts that cannot be used for electric wheelchairs, lifts and narrow doors, bathrooms without the essential requirements to guarantee the personal hygiene of those with mobility difficulties,
- beaches. The state-owned concessions to date do not provide for any obligation to guarantee access to those with locomotion difficulties. Thus, for example, in Lazio, on 350 km of coastline, there are 5 beaches that are only theoretically accessible and in any case not reachable by public transport. Their realization is also the merit of voluntary associations, without any contribution from public administrations.
Pride and dignity
Pride serves to affirm dignity. Uniform rules are needed to guarantee equal rights in every Region, Province and Municipality of Italy. As in any other country. The census of barriers, architectural and not only, is the premise for defining programs for solving problems, in defined times to be subjected to checks, responsibilities and sanctions. And every project must be shared, down to the smallest detail, with patient associations.
Goodism and solidarity are not enough, as infrastructure deficits force the disabled into humiliation and unacceptable dangers. In addition to discouraging autonomy, only utopian in such scenarios. And the costs of all this, of course, fall on the disabled and their families.
Disabilities and non-super-able rights
Un-Super-able it is the name that best suits the disabled who resist this environment unable to welcome them and are super-skilled in resilience, patience, perseverance.
The bureaucracy and the timing of the management of the practices for the recognition of disability, the granting of assistance, the authorization of aids exceed the imagination of Kafka's novels.
Availability of treatments, drugs and services varies enormously from region to region. According to the respective health and welfare policies, as well as the budget allocations.
The in-Super-able in the Lazio region, to cite just one example, they must go to treatment centers at their own expense and expense, unless they have to give it up due to inability to organize their own transport (and / or incompetence). Thus finding themselves deprived, after months or years on the waiting list, of those treatments that the public health service is often not able to cover, even through private centers with agreements, if not a small part of the needs.
The burden on families
The families they are still the only real salvation, to make up for the lack of public assistance. But family members or close friends who are forced to give up work to provide essential assistance to their loved ones do not receive any form of recognition. Neither salary, nor social security.
In the Middle Ages of Rights, the un-super-able is only the number of a practice that is managed according to pre-established protocols, if and when it is possible. The prescriptions - for example, of disposable devices - are rigid, regardless of the concrete needs of the individual patient. And so the drugs passed from the mutual, whose selection is often inspired by criteria of economy rather than efficacy and tolerability of the active ingredients.
As that wasn't enough, in Italy the right to choose the healthcare system to refer to for the supply of aids will also disappear. You will have to address the winner of the contract, as if it were the construction of a motorway. Since these are prostheses and orthopedic materials of daily use, prams and anti-decubitus pillows to be chosen, calibrated and adapted with extreme care and professionalism, in the context of relationships based on trust with professionals that the unskilled sometimes meet more often doctors.
The pride of the Disability Pride it therefore serves to obtain the affirmation of the un-super-able rights. Without waiting any longer, without compromise, in compliance with the law that has been ignored so far.
(Dario Dongo)
Footnotes
1. See World Report on Disabilities, WHO (2011), Chapter 1 - Understanding Disabilities, its http://www.who.int/disabilities/world_report/2011/report.pdf
2. See law 67/06, 'Measures for the judicial protection of persons with disabilities who are victims of discrimination', up http://www.parlamento.it/parlam/leggi/06067l.htm
3. See note 1, Introduction
4. The schooling of the disabled is severely limited due to various barriers. This is revealed by a study, published by Unicef in March 2018, which was conducted in 49 countries but not also in Italy (nor in other EU countries), due to unavailability of data. See http://uis.unesco.org/en/news/education-and-disability-analysis-data-49-countries
Dario Dongo, lawyer and journalist, PhD in international food law, founder of WIISE (FARE - GIFT - Food Times) and Égalité.
