Disability Pride Network and Disability Care Workshops, 3-4.12.20

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# We are no longer patient!

An open letter to institutions and civil society introduces two days of work. We are no more patient than a society that systematically violates internationally established rules for the protection of the weakest.

have passed from the Italian law for the removal of architectural barriers (law 41/1986), 21 from that on job placement (law 82/99), 14 from the adoption of UN Convention on the Rights of Persons with Disabilities (CRPD). But most of the related prescriptions are still unknown today, in the prehistory of the civilization in which we live. And the time of pietism has passed, we must now take action.

Workshops of the Disability Pride Network. 3.12.20, 14:30 pm-19:30pm

The workshops of the Disability Pride Network are officially inaugurated on 3.12.20 Three Working Groups (WG) thus launch a series of activities, to be developed in 2021, to examine and address the issues relating to:

- rights of people with disabilities, what challenges for the future,

- LEA, Essential Levels of Assistance,

- accessibility, universal usability, women empowerment of people with disabilities.

Following, from 18 pm, collective debate and setting up of working tables for the priorities to be developed in 30.

Disability Care. 4.12.20, 8:45 pm-11:30pm

Matteo Lorito (Rector of Federico II University, Naples) e Francesco Sicurello (President of IITM / AITIM - Italian Association of Telemedicine, Computer Medicine, University of Milano Bicocca) introduce the speakers on the various topics:

- Marco Ferrazzoli (CNR, National Research Council). Disability and communication,
- Francesca Gorini (CNR). Disability,
- Filippo Amore (National Center of Services and Research for the Prevention of Blindness and Visual Rehabilitation, IAPB Italia Onlus, Fondazione Policlinico Gemelli, Rome). Disability in vision,
- Angelo Schenone (IRCCS San Martino Hospital and University of Genoa). Muscle disability,
- Raul Saggini (Physical Medicine and Rehabilitation, University of Chieti). Innovations in rehabilitation,
- Sara Lanza (Physical Medicine and Rehabilitation, ASP Ragusa). Traditional rehabilitation vs. new technologies,
- Paolo Milia (Prosperius Tiberino Institute, Umbertide). Robotic gait rehabilitation,
- Leonardo Longo (Laser Institute, Florence). Laser therapy in lesions of the nervous system,
- Angelo Vescovi (House for Relief of Suffering in San Giovanni Rotondo, University of Milan Bicocca). Cell regeneration,
- Antonio Colombo (SNO and Polo Neurologico Brianteo). Neurological disabilities in the period of Covid-19,
- Antonino Salvia (Health Director of the Santa Lucia IRCCS Foundation, Rome). Covid-19 and pathologies of the nervous system, which neurorehabilitation?
- Antonella Limonta (IRCCS INRCA Casatenovo LC), Alessandro Orro (CNR-ITB Milan). Disability, from Covid-19 telemonitoring to telerehabilitation of patients with comorbidities.

Disabilities, rights, access to care. Panel discussion. 4.12.20, 11: 30-13: 30

Institutions and associations participate in a round table, on 4.12.20 at 11 am, on rights and accessibility to better social and health services. The interventions:

- Steni Di Piazza, Undersecretary to the Welfare and senator,
- Leonardo Penna, deputy, Parliamentary Intergroup on Disabilities,
- Donatella Bonaiuti, SIMFER
- Carmelo Comisi, Disability Pride Network,
- Giacomo Sicurello, NeuroSpine Community,
- Federico De Salvo, Prosperius Tiberino Institute (Umbertide, PG)
- Mattia Mauri, EDOniamosperanza onlus Association (Lissone, MB)
- Dario Dongo, Égalitè Onlus,
- Tyrone Nigretti, Break down the Onlus Barriers,
- Massimo Marra, CIDP Italia Onlus, University of Salento,
- Margherita Gregori, Federation of Rare Diseases UNIAMO,
- Dora Di Cara, guarantor of the rights of people with disabilities, Palermo,
- Giuseppe Badolato, association Jura Hominis, Italian section International Commission of Jurists.

The horizons of research

Disability Care, at its second meeting annual (v. previous article), offers an important opportunity for comparison with the scientific community engaged in the fields of interest. Technological innovation, health sustainability, biological regeneration, medical rehabilitation, early prevention, accurate diagnosis and appropriate therapies.

The horizons of research of interest for the disabled community, and the community in general, are numerous. We have regard to epidemiology, socio-sanitary impact of disabilities, new LEAs. And above all to clinical trials and practices, molecular regeneration and stem cells. Innovative technologies (Information and Assistive Technology, IAT) and new rehabilitation methods, Bio & NeuroInformatics, Brain Computer (Special), Interfaces, neural networks and artificial intelligence, robotics and exoskeletons, virtual and augmented reality.

Organization, program, how to participate

Events are organized in webinar mode, on the initiative and with the patronage of:

- National Research Council (CNR), Ministry of Health,

- University of Milan Bicocca (Department of computer systems and communication),

- International Institute of Telemedicine (IITM),

- Neurospine Community, Disability Pride Italy, Italian Association of Telemedicine and Medical Informatics (ITIM), EDOniamosperanzaonlus, Abatti le barriere and Égalité Onlus.

The program updated is available on the website of CNR. It is possible to participate in live streaming on the Facebook page and on the YouTube channel of Disability Pride Italy. Users can participate in chat and ask questions to all the speakers, who will answer at the end of each session.

We look forward to seeing you, # égalité!

Dario Dongo and Elena Bosani

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